Welcome to my blog. Wow, where to begin. Perhaps the beginning is a good place. Had someone said to me two years ago I would be sat here writing a blog I wouldn’t have believed them. Having just about mastered emails (#technophobe) and joined Facebook 10 years later than the rest of the world (#socialmediaphobe), I am the world’s least likely blogger. I wouldn’t be doing this had my life not been dramatically changed by my father’s dementia diagnosis.
Anyway Welcome and thanks for reading my attempt at writing. Here’s some background. The basics, my name is Hannah Mackay and Im a 36 year old Dementia Campaigner, and a police officer. If that wasn’t enough I am also a mother of two, whose mission is to raise awareness and funds to unite people and beat dementia!!
In 2017 my father aged only 60 was diagnosed with Frontal Temporal Dementia. This is a type of dementia that typically affects younger people between the ages of 45 to 65 . It takes hold when nerve cells in the frontal and temporal lobes of the brain die and the pathways connecting them are lost and the lobes shrink. That’s the science bit but living through it and watching it is so much harder as I am sure many of you reading this know and appreciate.
In some cases, as in my family FTD can be genetic. My grandad had died of complications arising from ‘Alzheimer’s’ in his mid fifties, that was before people knew about FTD. Genetic tests have now revealed that I have inherited the gene that means I will develop the condition at some point. Sadly this gives my children a 50% chance of also developing it in later life. They are currently aged 6 and 3. This is something that is always on my mind and I am determined to do everything I can to raise funds to find a cure and raise awareness, so people living with the condition are treated properly and understood.
Frontotemporal (FTD) dementia can cause problems with decision making, planning and organising, loss of emotional responses, loss of language and eventually movement in the later stages.
My blog is intended to share my story as I journey through this dementia world. It is a cruel condition and I grieve for the many people it affects including me and my family. I do believe however, life is for living and I am currently well. I am determined to help and support others affected by dementia. I want to show that in the face of adversity by uniting together and supporting each other we will beat this. Research is essential which is why we need the funds a for the generations to come and stop people loosing their loved ones to this cruel condition now.
If you would like to support the campaigning work I am doing you can make a donation at my Just Giving Page Here.