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Hannah Mackay Dementia Campaigner

Raising awareness and funds to beat early onset dementia

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Category: Dementia Campaigner

December 14/12/18 – The moment of truth

The time had come we were sat in the waiting room. I relived pretty much every appointment I have had before, the sights, smells, I even remembered all the conversations and the staff – suddenly it all seemed uneasily familiar.

Coming to terms, Frontotemporal Dementia, Genetic Testing, Grieving Process, Test Results

The Summer of 2018 – decision time

Anyway the poor professor having asked the question was in no way ready for the answer. All my thoughts, my emotions and the rationale behind my need to find out came running out of my mouth like a tsunami.

Early Onset Dementia, Genetic Counseling, Genetic Testing, Inherited Genetic Conditions

Running for Dad and the precious put down

The Ultra Marathon runners started before us and at the start line Dad decided that,the Ultra Marathon was for him! Off he went closely followed by the girls calling after him “Grandad that’s not the race for you” but there was no stopping him.

Early Onset Dementia, Life is For Living, Making Memories, Running

Dad’s Run (Walk) – the race is on!

Little did I know at the time that running would come to mean so much to me. Time to think and clear my head and find the confidence I had forgotten I had.

Dementia Campaigner, Dementia Diagnosis, United Against Dementia

The year after my Dad’s diagnosis

I asked myself, minute by minute, everyday and the weeks turned into months. I wavered and agonised over whether to have the test or not. I started to feel as the time passed that I could not escape the question. My gut feeling was I want to find out.

Genetic Testing, Inherited Genetic Conditions, United Against Dementia, United We Stand

Kicked in a stomach by a horse

In another way his diagnosis was a relief. There was an explanation for his behaviour, a rationale behind his thoughts, a reason why he had suddenly decided to walk 6 miles across Ashdown Forest in the dark

Early Onset Dementia, Frontotemporal Dementia, Genetic Testing, Hannah Mackay, Inherited Genetic Conditions

Love is stronger than dementia

Throughout my childhood my Dad was travelling and worked long hours to provide me with amazing opportunities. It’s fair to say I was and am a ‘Daddies girl’ and I’m not afraid to admit it.

Dementia Campaigner, Dementia Diagnosis, Families and dementia, Frontotemporal Dementia, United Against Dementia

My name is Hannah Mackay and I am a Dementia Campaigner

My blog is intended to share my story as I journey through this dementia world. It is a cruel condition and I grieve for the many people it affects including me and my family. I do believe however, life is for living and I am currently well.

Dementia Campaigner, Hannah Mackay, Life is For Living, Together We Will Win, United Against Dementia, United We Stand, Working Mum
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